I woke up today to a team of heart failure doctors in our room saying they are very concerned about Vivi's belly and how large it has become. They are planning on doing a procedure today or tomorrow that will distinguish a.)what the fluid in her belly is,b.) where it has come from and c.)if it will effect her having a transplant. This has the potential to be very serious if it's not a consequence of heart failure, and put a transplant in jeopardy. As crazy as it sounds, we want heart failure as the culprit.
This is not the way you want to wake up in the morning. My heart is aching and my head is spinning. I try to tell myself that when I wake up and the first thing I do is cry, the day has to get better! I just can't understand why we are riding this roller coaster. I know God is here, but sometimes it's hard to then wonder why these hiccups are happening. My mantra for the day is 'there is no reason to worry until I have evidence to worry.' We'll see how that one goes.